Thanks everyone for sending up good thoughts & prayers for Mason's CF appointment on Monday! It went well! He weighed in at 14 lbs. 5 oz. and 25 inches long. However, his weight puts him under the 50th percentile mark where they'd like him to be, so he is now classified in the "yellow" zone. We will just keep an eye on that and hopefully he'll start gaining some more weight. I understand the point of this benchmark, CF kids can be nutritionally deficient and thus on the smaller side of the scale. However, Mason is steadily growing, is healthy, and happy, so for Matt & I that is all that matters. :)
We did have a melt down at the doctor though! Not sure where it came from, other than maybe he remembered getting shots the week before and was scared that was going to happen again. As soon as we stripped him down to his diaper and his nurse began the normal routine, he lost it! Crying and screaming with REAL TEARS! Ugh - broke my heart! Felt bad for our nurse though because he had NEVER acted this way before, so she kind of felt responsible. But later towards the end of the visit when she had to do a throat swab, he didn't freak out on her! When the doctors began streaming in looking, listening to him, and talking to us, he was perfectly happy! Laughing, jumping, kicking, smiling, and talking away!
Met the new GI doctor...and...we...LOOOVEE him! Our nurse compares him to Doogie Howser b/c he is pretty young looking! I will refer to him as Dr. R since his last name is something ridiculous! He was super nice, but no sugar coating. He cut straight through all the crap and told us what we needed to know. This is how all doctors should be. It's our kid, we have every right to know what is going on and what is to come. He (and apparently every other doctor in the clinic) looked over Mason's X-Ray and he didn't see anything unusual. I think maybe there had been confusion b/c he is so young it is a little different and maybe they were just expecting to find something?? Not sure, but good news is it's all ok!
Angie, my oldest sister, came to the visit with us! She wanted to listen and learn too. She picked a great day to come since we got to see all his regular doctors. Plus I had a lot of good questions this time so we all learned much more. This last visit reassured me, as I'm sure it did for Matt, that this group of CF specialists is a good fit for us.We had been having doubts.
Well this weekend is one of my best friends, Tristen's bridal shower! She is the last of our tight group of girls to get married...bittersweet! I get the pleasure of driving to Liberty Hill with Mason ALONE! AHHH! Fingers crossed everything goes well. All our long trips have included Matt, so if Mason were to get fussy I just crawled in the back to keep him company. Not sure how this is going to work out?!?! Looking forward to the visit though. Haven't seen my friends in a while. Also, I'll be staying with Amy, Seth, and the girls who I hadn't seen in several weeks either! All my other family will be out of town (Jenn on a teacher retreat, Daddy, Angie, Kevin, & boys in Tennessee visiting Skip and Wanda) so it'll be quality time with Deans ... and hopefully time to swim in their pool. I have yet to swim all summer!
Oh, where will Matt be you ask?? Playing baseball FD vs PD...I see how it is!!! and working, but that doesn't count ;)
Have a great weekend! And Happy 12th Birthday to Garrett!!
Love ya'll-
Jess
Thursday, August 11, 2011
Sunday, August 7, 2011
Hello!
Well, so far things have been going well with Mason back on Prevacid in the morning. Thank you Lord! It has been working out great giving it to him at 6AM, even if he is "supposed" to eat at 6:30, he is more patient these days in the AM to wait until 7AM to eat. Plus, I keep him pretty busy until then, diaper change, dressed and treatments usually take up most of the hour he has to wait before eating.
We FINALLY heard back on the x-ray results after waiting over a week! Called the Friday, the week after and left a message w/ the nurse basically saying that we weren't too happy and were getting frustrated that no one had back with us, even with me calling and leaving messages. Got a call from her first thing Monday morning apologizing, but that the GI nurse hadn't been returning her messages either to find out the results. Needless to say, I got a call from the GI nurse AND GI doctor later that day saying that everything looked normal with his intestines, that he didn't seem to be backed up. Which at this point we kind of figured, but still it shouldn't take this long. What if he had really been sick (God forbid)?? So, yes, I am now "that" Mom who is the pain in the ass to the doctors and nurses...and I will not apologize for it! Did learn from our nurse that the GI Dr. - Dr. B - that I had spoken with on the phone that answered so many of our questions, well he is just temporary. UGH! He was kind of just a fill in between doctors. BUT luckily the new doctor has started and apparently he is super excited about getting to work with CF kids...I just hope we will be as excited about him. We meet him tomorrow at Mason's next CF clinic appointment. FINALLY we are seeing a GI doctor since his diagnosis!
Mason had his 4 month check up at his regular Dr. on Thursday, which means more shots. He did awesome though! The first immunization was orally, and he sucked it down! Didn't even know when she stuck the first needle in, but definitely noticed the 2nd! Cried for about 5 seconds, then was right back to smiling and talking to the nurse! He weighed in at 14 lbs. 1 oz. and 25 inches long. Kind of concerned what the CF doctors will say about his weight b/c that puts him between the 25th and 50th percentile on the growth chart, and the CF Foundation is pretty adamant about being at least in the 50th. So, we shall see tomorrow...
At school Mason had been giving Paula problems with taking his first bottle, not eating until 1:30 and then during his late afternoon bottle parents are already starting to pick up kids...so of course he has to stop and visit! It finally clicked for us that 1:30 is nap time...no kids playing, no excitement, no distraction...so Mason is a stinker and must have it pretty quite and nothing going on around him before he will eat! Luckily, she has worked out a schedule for her and Mason ... 11, 2, and 5...she wakes him up early from nap to eat and feeds him in the nursery where it is quite. High Maintenance Baby!! HAHA!
I got to see ALLY!! She is back in Texas from NEW YORK for a few weeks, so her and her wonderful Mom made a shopping trip to CS last week and I met them for a delicious lunch! It was SOOOO great to see her!
Be thinking of Mason tomorrow at his Dr. appointment!
Love,
Jess
Well, so far things have been going well with Mason back on Prevacid in the morning. Thank you Lord! It has been working out great giving it to him at 6AM, even if he is "supposed" to eat at 6:30, he is more patient these days in the AM to wait until 7AM to eat. Plus, I keep him pretty busy until then, diaper change, dressed and treatments usually take up most of the hour he has to wait before eating.
We FINALLY heard back on the x-ray results after waiting over a week! Called the Friday, the week after and left a message w/ the nurse basically saying that we weren't too happy and were getting frustrated that no one had back with us, even with me calling and leaving messages. Got a call from her first thing Monday morning apologizing, but that the GI nurse hadn't been returning her messages either to find out the results. Needless to say, I got a call from the GI nurse AND GI doctor later that day saying that everything looked normal with his intestines, that he didn't seem to be backed up. Which at this point we kind of figured, but still it shouldn't take this long. What if he had really been sick (God forbid)?? So, yes, I am now "that" Mom who is the pain in the ass to the doctors and nurses...and I will not apologize for it! Did learn from our nurse that the GI Dr. - Dr. B - that I had spoken with on the phone that answered so many of our questions, well he is just temporary. UGH! He was kind of just a fill in between doctors. BUT luckily the new doctor has started and apparently he is super excited about getting to work with CF kids...I just hope we will be as excited about him. We meet him tomorrow at Mason's next CF clinic appointment. FINALLY we are seeing a GI doctor since his diagnosis!
Mason had his 4 month check up at his regular Dr. on Thursday, which means more shots. He did awesome though! The first immunization was orally, and he sucked it down! Didn't even know when she stuck the first needle in, but definitely noticed the 2nd! Cried for about 5 seconds, then was right back to smiling and talking to the nurse! He weighed in at 14 lbs. 1 oz. and 25 inches long. Kind of concerned what the CF doctors will say about his weight b/c that puts him between the 25th and 50th percentile on the growth chart, and the CF Foundation is pretty adamant about being at least in the 50th. So, we shall see tomorrow...
At school Mason had been giving Paula problems with taking his first bottle, not eating until 1:30 and then during his late afternoon bottle parents are already starting to pick up kids...so of course he has to stop and visit! It finally clicked for us that 1:30 is nap time...no kids playing, no excitement, no distraction...so Mason is a stinker and must have it pretty quite and nothing going on around him before he will eat! Luckily, she has worked out a schedule for her and Mason ... 11, 2, and 5...she wakes him up early from nap to eat and feeds him in the nursery where it is quite. High Maintenance Baby!! HAHA!
I got to see ALLY!! She is back in Texas from NEW YORK for a few weeks, so her and her wonderful Mom made a shopping trip to CS last week and I met them for a delicious lunch! It was SOOOO great to see her!
Be thinking of Mason tomorrow at his Dr. appointment!
Love,
Jess
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